Person high-fives a healthcare provider during a clinic visit.

Tools to Enhance Health Care for Adults with IDD

Adults with intellectual and developmental disabilities (IDD) often face barriers to quality health care, including complex medical needs, limited access to services, communication challenges, and gaps in preventive care. The IDD Toolkit helps primary care providers deliver patient-centered, evidence-based care through practical clinical tools, health monitoring resources, and supports for individuals with IDD and their families.

Developed through a partnership between the Vanderbilt Kennedy Center and Surrey Place, and based on the Canadian Consensus Guidelines for the Primary Care of Adults with Developmental Disabilities, the toolkit was adapted for use in the United States with input from clinicians, caregivers, self-advocates, and family members. Its goal is to provide easy access to best-practice resources that support better health outcomes and more equitable care for adults with IDD.

Read about the IDD Toolkit and its development.

Healthcare provider and patient reviewing information.

Clinical tools and guidance for physicians, nurse practitioners, and physician assistants.

Resources to support health care planning and communication for people with IDD and those who support them, including family members, direct support professionals, and self-advocates.

“The IDD Toolkit has become a valuable resource in my practice. It helps me have more effective conversations, making appointments more productive and person-centered.”

Beth M., MD
Vanderbilt University Medical Center

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